Hi my darling darling Mum,
There’s so much going on, I really wish I could ring you and talk about it all.
We had Mike’s follow-up appointment in London.
They have confirmed he has Cardiomyopathy, left ventricle noncompaction.
It cannot be cured but another change of meds and hopefully he’ll see his quality of life improve.
They have also confirmed that it is genetic so they will start screening our girls when they are older.
Madison had Flitter from her class last weekend so we went for a Costa and a play in the park.
We got home and played snakes and ladders and boom boom balloon, which the girls loved.
On the Sunday our girls got their Gees at Jiu Jitsu and we took them to ride their bikes without their stabilisers for the first time. They did so well Mum.
In the afternoon we went to Camber Sands and met with Nana and Pops and Steph, Ed and the kids. It was really lovely, the girls had great fun running in and out of the sea.
It made me think of you, you loved the beach so much Mum.
It was Chloe’s assembly this week and I couldn’t make it so the amazing Auntie Jo went and took photos for us.
I was gutted but so pleased that Jo was there.
On Friday I got to spend some time with Nikki and her new twin boys but I also went to Isabelle’s Macmillan coffee and cake at her nursery, she was so gorgeous sharing her special cakes with me.
Yesterday I did the amazingly funny thing of arriving at a birthday party 24 hours early, Abigail was NOT impressed! Haha.
We played games and chilled out at home for the afternoon.
I don’t know whether you remember Steve’s Mum Audrey being diagnosed with breast cancer at the same time as you, but she lost her fight last night Mum and has joined you as an angel.
I feel so sad for all the memories of you and for the pain that I know Steve is feeling.
Just thinking about losing you still makes me cry instantly Mum.
I’m ok whilst I keep busy and keep going, but every time I stop and think about you I still feel heartbroken that you aren’t here.
Our other really big exciting news Mum is that Vix is pregnant again.
I SO wish you could be here for all of it.
Another grandchild, you would be so excited Mum.
I love and miss you very much still.
I wish I could talk to you for real.
Thinking of you and missing you Mum.
All my love
Pen xxx